Please share Jason's post on your social media sites wherever possible. Get the word out. Remember, you don't have to be a blood type match to be a donor! He needs our help!
Exactly what I need to learn. Handing me sheets of paper with what I can’t eat for phosphorous and what I can’t eat for gout plus what I can’t eat for sodium leaves me with nothing to eat... I’m totally interested in what the easiest diet is. If I can get a donor then I should only be on dialysis 4-6 months.Jason, I went through this exact same thing for three years and got a kidney from my sister last year. I can give some good first hand advice. You will feel much better on dialysis so definitely look forward to starting it. Hopefully your fistula is looking good. Took two surgeries to get mine to have a good thrill and swell up. For diet I lived on Suger Smacks and Rice Krispies cereal with almond milk for 2.5 years. That’s literally all I ate for every meal. Anything else and gout would would be merciless. Any food with phosphorus (even with a binder) and I would get rashes on my legs that would itch so bad I nearly went crazy. Everything got way better on dialysis though. For those who really want to donate, you most likely will be able to or they can trade your kidney for a better match. Kidneys are not like bone marrow or anything. Closer matches just means less anti rejection drugs. I truly hope someone helps you out and I’ll be thinking about you. Feel free to shoot me a pm if you have any questions. People helped me and I’d be happy to do the same. Don’t rely on just doctors alone. They haven’t lived it so they don’t fully understand. Take care of yourself.